The federal requirement that a state recover the cost of long-term care Medicaid paid for from the estate of the person who received it after they die - the reason the family home is at stake, and the exemptions and hardship rules that limit it.
Medicaid pays for most nursing-home care in the United States, and federal law requires every state to seek repayment of what it spent on a recipient's long-term care - nursing facility services, home and community-based services, and related hospital and prescription costs - from that person's estate after death, where the recipient was over an age set by statute when the services were provided or was permanently institutionalised. States may go further and recover other Medicaid costs, and a number do. The claim is made against the estate like any other creditor's claim, and in many states it is a priority claim.
The estate, for most states, means the probate estate - property that passes under a will or by intestacy. Federal law lets a state expand the definition to reach property that passes outside probate, such as jointly held property, life estates and assets in a living trust, and the states that have done so can recover from a home that the family assumed would pass automatically to a co-owner. A state's definition is the first thing to establish, because the same house is exposed in one state and not in the next.
The limits are real. Recovery is deferred entirely while a surviving spouse is alive, while a child under an age set by statute survives, or while a blind or disabled child of any age survives; and a home is protected while certain relatives who lived in it and provided care continue to live there. Each state must have an undue-hardship waiver process, and a state may not recover more than the estate is worth or more than Medicaid actually paid. A person who bought a qualifying long-term-care partnership policy has an additional asset protection. None of this is automatic; the exemptions are asserted by the family in response to the state's claim.
The time to see an elder-law lawyer is before Medicaid is applied for, not after the death, because the exposure of the home depends on decisions - how it is titled, who lives in it, whether a caregiver-child or sibling exemption can be established - that have to be documented in advance and are subject to the look-back rules on transfers. After a death, a lawyer can check whether the state's claim is limited to what the statute allows, whether a deferral or exemption applies, and whether a hardship waiver should be sought, and can make sure the estate does not pay a claim the state was not entitled to make.
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